Improving Access to Psychological Therapies (IAPT) v2.0 Data Set Consultation Questionnaire

Closed 6 Jun 2019

Opened 9 May 2019

Feedback Updated 24 Oct 2019

We Asked

We asked for feedback on our proposals for the Improving Access to Psychological Therapies (IAPT) Data Set Version 2.0, particularly with regard to the alignment with the Mental Health Services Data Set (MHSDS) and the increased use of clinical terminology within the data set.

You Said

Feedback was received from a range of interested stakeholders which the Data Set Development Service (DSDS) have considered and will be taking into account throughout the work to take the proposal forward.

The responses generally supported the draft technical solutions and timescales proposed. Based on the feedback received, we have made a small number of minor amendments to the Data Set Specification and taken action to update our IAPT v2.0 User Guidance in accordance with the feedback received. Notable changes are as follows:

We Did

Increased use of clinical terminology

You said: Providers requested guidance for submitting data using clinical terminology.

We Did: Extensive guidance has been added to the IAPT v2.0 User Guidance document with regard to submitting data using SNOMED CT. A document entitled IAPT v2.0 SNOMED CT Mapping will also be published which provides mapping guidance to enable existing data items to be flowed using SNOMED CT where required. Both documents can be found on the IAPT web pages on the NHS Digital website.

Routine Outcome Measures

You said: Providers indicated that the use of any outcome measures would require guidance to ensure that providers are using outcome measures as expected.

We did: The list of Routine Outcome Measures has been amended for IAPT v2.0, with some deletions as well as additions. We have been working with IAPT programme to provide SNOMED mapping guidance and policy guidance for where these outcome measures are expected to be used and how they should be mapped to the data set.

Removal of data items

You said: We received feedback regarding the removal of some of the existing v1.5 data items that were useful to some providers locally.

We did: We have reinforced the message that the data set is for secondary uses only and providers are still able to collect what data they wish locally, for local use. Removal of these items from the data set is because they no longer serve a purpose in national reports and does not indicate services should stop collecting these locally.

Care Personnel Qualification table

You said: Providers highlighted a number of factors which may lead to difficulties for submitting Care Personnel Qualification data, including the burden of setting up and maintaining this information and the challenge where this data is stored on a separate system.

We did: Comprehensive guidance has been added to the IAPT v2.0 User Guidance document with regard to submitting to the Care Personnel Qualification table.

The additional burden of submitting this information is acknowledged. Services should already be maintaining this information locally and the burden of data submission is deemed proportionate for the benefits of national uses of this information, such as workforce planning.

Modular data design

You said: There was some misunderstanding about that modular data design and additional data tables with some services assuming that all new data MUST be now be captured by clinical staff, which caused concern relating to burden and inappropriateness

We did: We have reinforced the message that data set is for secondary uses only and providers should only return data in the data set that is already captured locally, for primary uses. Therefore, if a table is not mandatory, it may be left blank if the correlating data is not collected locally.

The reinforced guidance can be found in section ‘4.1 – Key points relating to mandatory fields and validations’ of the IAPT v2.0 User Guidance.

Gender and Sexual Orientation

You said: Providers asked how we intended on accommodating the breadth of diversity in the way people identify to services within the data set.

We did: Although the IAPT team are not responsible for the diversity of gender and sexual orientation codes that can be recorded to the data set, this feedback was passed on through appropriate governance routes, including to NHS England, by way of our submission to the Data Coordination Board.

Please follow this link for the full summary report which contains a breakdown of the response results: IAPT v2.0 Public Consultation Summary Report.

What Happens Next

Keep up to date with the development of IAPT v2.0 through the developer’s website: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/improving-access-to-psychological-therapies-data-set

Overview

Dear interested party

Improving Access to Psychological Therapies (IAPT) Data Set

The IAPT data set was developed to collect national data on IAPT services, to support service delivery and inform clinical decision-making and encourage improved access to talking therapies for people with common mental health problems such as depression and anxiety disorders. 

Started in April 2012, this data set is submitted on a monthly basis to NHS Digital by providers of NHS-funded IAPT care.

More information about the IAPT Data Set can be found on the developer's website https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/improving-access-to-psychological-therapies-data-set.

NHS Digital release the submitted data in the form of statistical publications covering activity, waiting times and patient outcomes such as recovery.  Further information about these reports can be found on the IAPT Reports webpage:
https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/improving-access-to-psychological-therapies-data-set/improving-access-to-psychological-therapies-data-set-reports

The developer is the Data Set Development Service within NHS Digital.

Data Coordination Board

The Data Coordination Board (DCB) has received a request for changes to an information standard, ISB1520: Improving Access to Psychological Therapies (IAPT) Data Set.

As part of the development and assurance process, this consultation seeks feedback on the proposed changes.

Your feedback will be reported back to the DCB which we anticipate will consider the request for change at its meeting in August 2019.

Version 2.0 of the IAPT Data Set

We are considering changes to the Improving Access to Psychological Therapies (IAPT) Data Set to ensure it remains relevant and continues to meet reporting requirements and clinical best practice.

The Data Set Development Service has commenced work to develop Version 2.0 of the IAPT Data Set, with the aim of publishing a revised Information Standard in August/September 2019 to support a new data collection starting from April 2020.

Full justification for release and a detailed specification of the changes can be found within the Change Specification document which is provided in draft format for this consultation.

Why We Are Consulting

The Data Set Development Service have been providing a number of engagement opportunities for stakeholders to contribute to the design of the data set. 

This online public consultation will ensure that everyone with an interest in the standard has had the opportunity to provide feedback on the IAPT v2.0 data set change requests received to date.

If you would like to take part, please complete and return one questionnaire per person, on either an individual or organisational basis, by midnight on Thursday 6 June 2019.  

A Word version of the questionnaire is also available to download below and can be submitted over e-mail. 

Completing the Consultation

Please consider the following in your responses:

  • Is this information available within local services?
  • Does the proposed solution allow local data to flow accurately?
  • Is the solution well defined?
  • Are code lists comprehensive?
  • Are the benefits clearly stated and justified with regard to burden?
  • What guidance would be required to support the flow and analysis of this data?
  • Does the documentation accurately reflect the changes?

Please also review the following documents before answering our consultation questions. These can be downloaded further down in the page.

  • Draft Change Specification
  • Draft Data Set Specification
  • Draft Data Model
  • Draft Terminology Requirements

A separate Burden Assessment Survey is also available to download below. This is specifically for service providers, to provide feedback with respect to the anticipated burden of the proposed changes listed in the above referenced documents.  Assessment of burden is an important aspect of the assurance process for all information standard developments requiring approval through the Data Coordination Board.

Thank you for your time and continued support.

Data Set Development Service, NHS Digital

 

What Happens Next

Thank you for taking the time to complete this survey, the feedback received will be used in formulating next steps and conversations with local providers where appropriate.

Areas

  • All Areas

Audiences

  • Health IT System Suppliers
  • Trust/Practice IT Staff
  • Acute Foundation Trusts
  • IT System suppliers
  • NHS Trusts

Interests

  • Informatics
  • Commissioning
  • Information Standards
  • Data Set Change Notices
  • Data Collections
  • Commissioning Data Sets