Independent Group Advising on the Release of Data (IGARD) - Terms of Reference

Closed 31 Aug 2015

Opened 16 Jun 2015

Feedback Updated 4 Oct 2016

We Asked

One of the roles of NHS Digital (Health and Social Care Information Centre (HSCIC)) is to ensure a systematic and coherent approach to the scrutiny of requests for data releases. Our increasing obligations under both the Health and Social Care Act 2012 and the Care Act 2014 triggered a review of the current governance arrangements and consequent decision to close the Data Access Advisory Group (DAAG).

The proposals for the establishment of IGARD to replace DAAG give that group an expanded remit and are designed to enable improvements in decision-making in respect of data releases, specifically through increasing:

  • transparency
  • accountability
  • participation
  • quality
  • consistency.

As an organisation, we are also working to strengthen public confidence in our work and to significantly enhance our public reputation.

This consultation invited feedback on the draft terms of reference for the proposed new Independent Group Advising on the Release of Data (IGARD).

You Said

Forty-three organisations and individuals responded and the replies have demonstrated the scope of the challenge facing NHS Digital - to strike a balance between corporate and information governance and to make data available for legitimate purposes to the wider health and care community. More information is available in the consultation report.

We Did

More information on IGARD and DAAG is available on the NHS Digital website.

Results Updated 4 Oct 2016

This consultation closed on 31 August 2015; thank you for your feedback.

A consultation report was published in November 2015 and is available below.

Files:

Overview

This consultation is now closed. Please see the Results section at the bottom of this page.

This consultation invites feedback on the draft terms of reference for the proposed new Independent Group Advising on the Release of Data (IGARD).

One of the roles of the Health and Social Care Information Centre (HSCIC) is to ensure a systematic and coherent approach to the scrutiny of requests for data releases. Our Increasing obligations under both the Health and Social Care Act 2012 and the Care Act 2014 triggered a review of the current governance arrangements and consequent decision to close the Data Access Advisory Group (DAAG).

The proposals for the establishment of IGARD to replace DAAG give that group an expanded remit and are designed to enable improvements in decision-making in respect of data releases, specifically through increasing:

  • transparency
  • accountability
  • participation
  • quality
  • consistency.

As an organisation, we are also working to strengthen public confidence in our work and to significantly enhance our public reputation.

We know that to achieve all our above aims, governance surrounding IGARD must be robust and appropriate. To that end we are seeking your views on the draft terms of reference for IGARD which we believe will allow it to oversee the improvements listed above.

We have set out a series of questions – see link below – which ask you to comment on different sections within the draft terms of reference. Each page includes the relevant text from the document but you can access the whole document on our website - [Draft Terms of Reference for IGARD].

If you would like to review the questions before completing the online survey, a  preview version is available in the Related Documents section below.

What will we do with your feedback?

All feedback will be consolidated and shared with respondents. In addition, we will publish a “You said – we did” document with the relevant messages and showing how the terms of reference have been amended. Individual responses from our partner organisations will be directly attributed; all other responses will be anonymised.

 

What Happens Next

All feedback will be consolidated and shared with respondents. In addition, we will publish a “You said – we did” document with the relevant messages and showing how the terms of reference have been amended. Individual responses from our partner organisations will be directly attributed; all other responses will be anonymised.

Areas

  • All Areas

Audiences

  • Clinicians
  • Managers
  • Patients
  • Members of the Public
  • Academia/Research
  • NHS Business Partners
  • Arms Length Bodies

Interests

  • Information Governance
  • Confidential Information
  • Data Dissemination
  • Data Releases