Patient and Carer Summary Care Records (SCR) Additional Information survey - pilot

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Closes 4 Jan 2019


The purpose of this survey is to assess the benefits and/or disadvantages of the Additional Information to patients and carers. Please see the Overview section for a description of the Additional Information.

Please be reassured that the results will be used only for this purpose.

You are welcome to provide answers only to the questions of most interest or relevance to you, however, we are grateful for your feedback and would appreciate as much detail as you are able to give. We expect that the survey will take approximately 15 minutes to complete.

You are welcome to complete this survey on behalf of yourself or someone that you care for.

Please do not provide any personal information.

If you are happy for us to contact you about your responses, please provide your contact details at the end of the survey- we will only contact you about the survey.


Privacy information

Analysis will be undertaken by NHS Digital internal staff and results will be collated and anonymised before sharing.

By filling out this survey you agree that we will process your data in line with the purposes agreed above and NHS Digital's Privacy Notice.

We respect your trust and protect your privacy and therefore will never sell or share this data with third parties. Your data will only be used by NHS Digital for the purposes specified. We will only use your data for the purposes you have agreed. We will store any personal data for 6 months. After that point, all personal elements will be deleted.

You have the right to withdraw from the survey at any time. You also have the right to withdraw personal information once you have completed the survey. If you do change your mind about sharing your information with us, please contact

Publishing responses (What Happens Next)

In line with the provisions of the government's Code of Practice on Consultations (available at, a summary report will be published within 12 weeks of the survey closing.

Publication may be on this website, elsewhere online and/or in printed form. A summary of responses will be published on the NHS Digital consultation website and this may include quotes of comments which however, will be non-attributable.

If appropriate, the summary will include a list of organisations that responded but not personal names, addresses or other contact details.

Note that unless we have asked for consent to contact you to discuss feedback, and you have provided that consent, we will not respond to comments on an individual basis.

Within 3 months of the survey closing we aim to publish a summary of responses recieved and provide a link to it from this page.


1. Do your responses refer to your SCR or the SCR of someone that you care for?

2. Do you have access to any of your medical information at present through your GP Practice system?

3. Would it be helpful if you could view your GP record?

4. Would it be helpful if you could view your Summary Care Record and the Additional Information? Please see the Overview section for a description of the Summary Care Record and Additional Information contents.

5. Have you consented to sharing Additional Information in your SCR?


6. Did someone at your GP Practice ask you if you agree to share SCR Additional Information?

7. Over the last year, how frequently have you been seen by healthcare staff other than your GP or GP Practice staff?

8. Do you feel reassured/ supported that information about your health is available through SCR and SCR Additional Information to a relevant healthcare professional when needed?

9. Do you use any other ways of sharing your healthcare information, other than through SCR? for example taking hand written notes about your health problems to appointments.

10. Did you understand what Summary Care Records were before starting this survey?

11. Did you understand what the Additional Information in Summary Care Records was before starting this survey?

12. Where did you hear about SCR Additional Information?