Mental Health and Learning Disabilities Data Set (MHLDDS)

Closed 29 Apr 2015

Opened 19 Mar 2015


Standardisation Committee for Care Information

The Standardisation Committee for Care Information (SCCI) has received a change request for an information standard. As part of the development and assurance process, this consultation seeks feedback on the proposed changes.

The Mental Health Services Data Set (MHSDS) is a change to the Mental Health and Learning Disabilities Data Set (MHLDDS) that supersedes and replaces this standard, as well as the following:

  • Child and Adolescent Mental Health Services (CAMHS) data set
  • Mental Health Care Cluster
  • Mental Health Clustering Tool
  • Learning Disabilities Census (LDC), included in Assuring Transformation standard
  • MHSDS will also incorporate the requirements of Children and Young People’s Improving Access to Psychological Therapies (CYP IAPT).


This consultation runs from 19 March to 29 April 2015.

Mental Health Services Data Set

The MHSDS is a patient level, output based, secondary uses data set which will deliver robust, comprehensive, nationally consistent and comparable person-based information for children, young people and adults who are in contact with Mental Health Services. As a secondary uses data set it intends to re-use clinical and operational data for purposes other than direct patient care. It defines the data items, definitions and associated value sets to be extracted or derived from local systems.

The types of things within the scope of this data set will include:

  • all activity relating to people who receive specialist secondary mental health care services and have, or are thought to have a mental illness; or who receive specialist secondary learning disabilities or autism spectrum disorder services and are thought to have a learning disability or autism spectrum disorder are within scope of the MHSDS.
  • Children and adolescents (including those with a learning disability and/or autism spectrum disorder) under the age of 18 should also be included where they are in receipt of care from a specialist secondary mental health, learning disabilities or autism spectrum disorder service or an early intervention service.
  • Children and young people in receipt of psychological therapies covered under the CYP IAPT programme are included within the scope of this standard.


Proposed changes

The proposed changes include:

  • Creation of a common structure in line with the referral-contact-activity structure of the CYPHS data set, requiring the removal and addition of some data items and values, in order to support the flow of children and adult Mental Health Services data.
  • Addition of new data tables and items to enable the flow of clinical terminology, including SNOMED CT (for example, Coded Scored Assessments tables).
  • Incorporation of data items from the CYP IAPT data set.
  • Incorporation of data items to enable the capture of learning disabilities census and Assuring Transformation data.
  • Changes to facilitate the collection of access and waiting time standard for Early Intervention in Psychosis (EIP)
  • Inclusion of CYP IAPT and Assuring Transformation data
  • Incorporation of Mental Health Care Clusters into this information standard.
  • Inclusion of additional data quality metrics to support validity of the data set.
  • Renaming of data items to conform to the NHS Data Model and Dictionary.


Full details of the changes can be found in the Proposal for Change and the Tecnhical Output Specification documents, links to which can be found at the bottom of this page.


Implementation timescales – System Suppliers

From 1st October 2015, MHSDS systems MUST be fully conformant with this information standard.

Implementation timescales – Care Providers

From 1st October 2015, providers of NHS-funded MHSDS MUST be able to collect information locally, and from 1st November 2015 MUST begin submitting MHSDS data in accordance with this information standard.

What Happens Next

This consultation closed on 29 April 2015. Your feedback will be summarised and submitted to SCCI for consideration as part of their final decision making. The summary of the feedback will also be published here.


  • All Areas


  • Clinicians
  • Members of the Public
  • CIOs
  • Health IT System Suppliers
  • Heads of Information
  • Information Managers
  • Data Quality Managers


  • Data Collections
  • Terminology
  • Children and young people
  • Secondary Uses